Displaying items by tag: aht
Watch the Stories Unfold
The National Center on Shaken Baby Syndrome is honored to share the personal stories of those affected by Shaken Baby Syndrome/Abusive Head Trauma. Please take a minute to watch these short video clips and learn from a few of the countless victims and their families that have been devastated by this preventable form of abuse.
Donor Spotlight
Philip Schweigert has been a long-time donor to the National Center on Shaken Baby Syndrome, supporting our mission to prevent shaken baby syndrome and promote the well-being of infants. We talked with Philip to find out more about him and where his generosity stems from.
What are you most passionate about? Why?
Family, children; their well being and the world we’re leaving for them. Bicycles. As to why; I have a wonderful family, and two terrific grandchildren. They are amazing people and mean so much to me. I’ve worked with children with severe disabilities for nearly 45 years. So children are a big part of my life and pretty much what got me up in the morning! The world seems like such a mess at times and I think that how we care for it and for one another especially our children is vitally important. Bicycles have always been a strong interest of mine, for alternative transportation, recreation, and more recently now a new vocation as a trained bicycle mechanic.
How would someone describe you?
I can only imagine what some might say! Others might say short with a short fuse at times. I do hope that they might say that I’m passionate, dedicated, and an advocate for children
What might someone be surprised to know about you?
I practice Tai Chi. I worked on the railroad.
If you could change the world, what would you do?
Reverse the effects of climate change. Help to insure that families have the means (food, shelter, healthcare) to adequately care for their children. Insist that government work for the people rather than their party or special interests.
What first got you interested in being a donor for our organization?
I had the opportunity to meet Dr. Barr and hear him speak on the issue of shaken baby syndrome/AHT. I felt that it was important to increase awareness of SBS and how to prevent it. I was also afforded the opportunity to speak at your conference on two separate occasions about my experiences working with children with severe disabilities who were the victims of SBS.
Why are you supporting the National Center on Shaken Baby Syndrome?
I am supporting NCSBS because I believe that children should be safe from harm.Through my bicycle business I purchase, refurbish, and resale bicycles providing affordable bicycles, and alternative transportation, while raising money for the mission of protecting children and strengthening families.
Is there anything else you'd like to share?
NCSBS, Keep up the good work! ALiM Cycles; For Kids’ Sake.
2023 Virtual Family Support Symposium
Virtual Family Support Symposium
May 17, 2023
The Virtual Family Support Symposium will be held on a virtual format and will feature presentations addressing many of the issues that families of victims of Shaken Baby Syndrome/Abusive Head Trauma face.
Registration is FREE!
Attendance for this event will be FREE to everyone who would like to participate! Though attendance is free for all participants, registration is required in order to receive information regarding symposium updates, announcements, and Zoom instructions.
For questions about the symposium, please contact the National Center on Shaken Baby Syndrome:
Phone: (801) 447-9360 ext.11
Sponsored by:
British Columbia Team Wins Child Abuse & Neglect Article of the Year for PURPLE Study
The National Center on Shaken Baby Syndrome (NCSBS) would like to congratulate our colleagues in British Columbia on having their research selected by the journal Child Abuse and Neglect as the 2018 article of the year. The article titled, Eight-year outcome of implementation of abusive head trauma prevention, is a hugely important contribution to the field of Shaken Baby Syndrome/Abusive Head Trauma (SBS/AHT) prevention and to the Period of PURPLE Crying program.
Anyone who has worked in the field of prevention can tell you just how challenging it is to move the needle. It is difficult to fully understand all aspects that contribute to something like child abuse. It requires diligence, persistence and a willingness to critically evaluate our efforts in order to make prevention effective. There is a saying that many of you have probably heard that guides those of us working in the field that goes, “An ounce of prevention is worth a pound of cure.”
The years of effort and work to evaluate the PURPLE program by our colleagues in British Columbia hardly fits the analogy of an “ounce” of prevention, however, this recognition, I think, illustrates just how important and impactful prevention can be if we remain committed.
I hope that you will join all of us at the National Center in congratulating the researchers, academics, prevention professionals, and donors who made this study possible for this most impressive recognition.
Ryan Steinbeigle
Executive Director
National Center on Shaken Baby Syndrome
Family Symposium Program
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All Times are Mountain Time Zone
9:00 AM - 9:10 AM
Danielle Vázquez, Executive Director : National Center on Shaken Baby Syndrome
Opening Remarks
9:10 AM - 9:50 AM
Calleen Kenney, Parent Consultant : Utah Family Voices
SSI's and Medicaid
9:50 AM - 10:30 AM
Peg Kinsell, Policy Director : Statewide Parent Advocacy Network (SPAN)
Rights, Responsibilities, and Resources for Supporting Students with Disabilities
10:30 AM - 10:40 AM
Break
10:40 AM - 11:20 AM
Rhonda Roth, Co-Owner, CEO, Occupational Therapist : Children in Motion
Building Skills with Occupational Therapy
11:20 AM - 12:00 PM
Emma Hemness, Esq., Founding Member : Hemness Faller Elder Law
Wills, Trusts and Guardianship
12:00 PM - 12:30 PM
Lunch
12:30 PM - 1:10 PM
Vicki Jay, CEO : National Alliance for Children's Grief
What is Grief?
1:10 PM - 1:50 PM
Megan Lopez, National Program Director: National Alliance for Children's Grief
Sibling Support
1:50 PM - 2:00 PM
Break
2:00 PM - 2:45 PM
Sameer Sabir, MBA, SM, BSc, Father of Rehma, Shaken and Killed on her 1st Birthday
Still Here - A Decade of Advocacy
2:45 PM - 3:00 PM
Danielle Vázquez, Executive Director : National Center on Shaken Baby Syndrome
Closing Remarks
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