Displaying items by tag: sbs

Tuesday, 31 August 2021 08:20

2022 Philadelphia

Eighteenth International Conference on SBS/AHT  
October 23, 24 and 25, 2022

 

The National Center on Shaken Baby Syndrome is excited to announce our Eighteenth International Conference on SBS/AHT to be held at the beautiful Loews Philadelphia Hotel on October 23, 24 and 25, 2022! The conference will bring the latest medical diagnostic innovations, investigative and legal procedures and techniques, evidence-based and creative SBS/AHT prevention programs and support for victim families.

Registration Now Open

2022 Registration Prices

 Physicians   $495
 General   $395
 Students   $250
 Families of Victims   $250
 Groups of 5-9*                   $350 per attendee
 Groups of 10+*                   $300 per attendee

 *Groups must receive a group code prior to registering. Please contact conference administrators at . or (801) 447-9360 for more information on group rates.

Late Fee: We highly recommend registering for the conference by September 23, 2022. Starting September 24th a $50 late fee will be incurred.

Conference COVID Policy: The Eighteenth International Conference on SBS/AHT will observe CDC and local Philadelphia guidelines.

Register for the Conference

 

Babies and Toddlers Trauma Investigations Bootcamp

The NCSBS in partnership with Babies and Toddlers, Inc will be hosting a three-hour trauma investigations bootcamp directly following the Eighteenth International Conference on SBS/AHT on Tuesday, October 25, 2022 from 1pm-4pm. Babies and Toddlers Trauma Investigations Bootcamp offers specific, practical investigative and courtroom training for any law enforcement or legal professional involved in these complex cases. An agenda and more details will be available soon. You can register for the Bootcamp as a stand-alone event or you can register for the Bootcamp together with the SBS/AHT conference at a discounted rate. We are now featuring a live streaming option for those who are unable to physically attend the conference and bootcamp.

Cost if registering for the Bootcamp only: $150

Cost if also registered for the NCSBS Conference: $125

Cost if registering for the Bootcamp Live Streaming Option: $125

Register for the Bootcamp

Published in 2022 Philadelphia
Tuesday, 18 December 2018 11:19

Watch the Stories Unfold

The National Center on Shaken Baby Syndrome is honored to share the personal stories of those affected by Shaken Baby Syndrome/Abusive Head Trauma. Please take a minute to watch these short video clips and learn from a few of the countless victims and their families that have been devastated by this preventable form of abuse.

 

DONATE NOW

Published in Donate
Friday, 10 September 2021 11:23

Donor Spotlight

Philip Schweigert has been a long-time donor to the National Center on Shaken Baby Syndrome, supporting our mission to prevent shaken baby syndrome and promote the well-being of infants. We talked with Philip to find out more about him and where his generosity stems from.

What are you most passionate about? Why?

Philip SchweigertFamily, children; their well being and the world we’re leaving for them. Bicycles. As to why; I have a wonderful family, and two terrific grandchildren. They are amazing people and mean so much to me. I’ve worked with children with severe disabilities for nearly 45 years. So children are a big part of my life and pretty much what got me up in the morning!  The world seems like such a mess at times and I think that how we care for it and for one another especially our children is vitally important. Bicycles have always been a strong interest of mine, for alternative transportation, recreation, and more recently now a new vocation as a trained bicycle mechanic. 

How would someone describe you?

I can only imagine what some might say! Others might say short with a short fuse at times. I do hope that they might say that I’m passionate, dedicated, and an advocate for children

What might someone be surprised to know about you? 

I practice Tai Chi. I worked on the railroad.

If you could change the world, what would you do? 

Reverse the effects of climate change. Help to insure that families have the means (food, shelter, healthcare) to adequately care for their children. Insist that government work for the people rather than their party or special interests.

What first got you interested in being a donor for our organization?

I had the opportunity to meet Dr. Barr and hear him speak on the issue of shaken baby syndrome/AHT. I felt that it was important to increase awareness of SBS and how to prevent it. I was also afforded the opportunity to speak at your  conference on two separate occasions  about my experiences working with children with severe disabilities who were the victims of SBS.

Why are you supporting the National Center on Shaken Baby Syndrome? 

I am supporting NCSBS because I believe that children should be safe from harm.Through my bicycle business I purchase, refurbish, and resale bicycles  providing affordable bicycles, and alternative transportation, while raising money for the mission  of protecting children and strengthening families. 

Is there anything else you'd like to share? 

NCSBS, Keep up the good work! ALiM Cycles; For Kids’ Sake.

DONATE NOW

Published in Donate
Thursday, 17 February 2022 13:54

2022 Resources for Families

The NCSBS recognizes that families and caregivers of victims of SBS may need additional support and services during their stay in Philadelphia. The Loews Philadelphia Hotel offers multiple accessible rooms and can accommodate additional requests to help make your stay as stress free as possible. For a guide to navigating accessibility in Philadelphia, please visit this link.

Family Reception

fam rec iconAfter the devastating injury or death of a child due to shaking, families and friends experience overwhelming grief and frustration. This conference provides an opportunity for families to connect with others to create a network of support. The NCSBS would like to invite all families to attend a gathering to honor the children and families affected by SBS/AHT. Light refreshments will be served and this event is open to all conference participants.  Family reception is Monday, October 24th, 2022 from 5:00-7:00 PM.

Financial Support

financial iconLimited funding is available this year to provide scholarships to families of victims of SBS/AHT. Families who have not attended an SBS/AHT Conference in the past or who have not received a scholarship from the NCSBS will be given priority. These funds shall be used exclusively towards hotel and travel costs. This assistance will be awarded in amounts up to $750. Funds will be reimbursed upon arrival at the conference with copies of all applicable receipts. To apply for the scholarship, please fill out the application found below. A committee will review all applications award based on financial need and desired outcomes of conference attendance.

All applications must be emailed to the address below no later than September 30, 2022. Applying for scholarships does not guarantee you will receive assistance.

pdfDownload the Scholarship Application and fill in the requested fields. Please contact Danielle Vazquez at  with any questions.

Published in 2022 Philadelphia
Tuesday, 16 February 2016 17:47

Attention on Prevention

Attention on Prevention podcast brings in guests to talk about the prevention of child and infant maltreatment as well as delve into other parenting issues. We'll bring in families of victims of abuse and victims themselves to discuss their stories, world experts in various medical fields to discuss current research and past experiences as well as other guests with legal and prevention backgrounds. Brought to you by the National Center on Shaken Baby Syndrome. You can find each month's episode here on our website or wherever you get your podcasts.

 
Published in Learn More

The Babies and Toddlers (BaT) Trauma Investigations Bootcamp that immediately follows the NCSBS's Eighteenth International Conference on Shaken Baby Syndrome/Abusive Head Trauma now features a live streaming option for those who will be unable to physically attend the conference and bootcamp in Philadelphia. The BaT bootcamp offers specific, practical investigative and courtroom training for any law enforcement or legal professional involved in these complex cases. The cost for the live streaming option is $125. Register for the conference and/or the BaT bootcamp at: https://dontshake.org/2022-philadelphia

Published in Connect

The National Center on Shaken Baby Syndrome (NCSBS) would like to congratulate our colleagues in British Columbia on having their research selected by the journal Child Abuse and Neglect as the 2018 article of the year. The article titled, Eight-year outcome of implementation of abusive head trauma prevention, is a hugely important contribution to the field of Shaken Baby Syndrome/Abusive Head Trauma (SBS/AHT) prevention and to the Period of PURPLE Crying program.

Anyone who has worked in the field of prevention can tell you just how challenging it is to move the needle. It is difficult to fully understand all aspects that contribute to something like child abuse. It requires diligence, persistence and a willingness to critically evaluate our efforts in order to make prevention effective. There is a saying that many of you have probably heard that guides those of us working in the field that goes, “An ounce of prevention is worth a pound of cure.”

The years of effort and work to evaluate the PURPLE program by our colleagues in British Columbia hardly fits the analogy of an “ounce” of prevention, however, this recognition, I think, illustrates just how important and impactful prevention can be if we remain committed.

I hope that you will join all of us at the National Center in congratulating the researchers, academics, prevention professionals, and donors who made this study possible for this most impressive recognition.

Ryan Steinbeigle
Executive Director
National Center on Shaken Baby Syndrome

Read the Announcement Here

Published in Connect

The implementation of the Period of PURPLE Crying prevention program is linked to a thirty-five percent reduction in hospitalizations with injuries related to shaken baby syndrome/abusive head trauma (SBS/AHT) according to a new study published in Child Abuse and Neglect.

“We know that the most common reason a child is shaken is because a parent or caregiver becomes frustrated with their baby’s crying,” said Ms. Marilyn Barr, co-author of the study and founding director of the National Center on Shaken Baby Syndrome (NCSBS). “This study shows that the Period of PURPLE Crying is improving how parents and caregivers cope with uncontrollable crying and is helping to prevent life-changing, life-threatening injuries in newborns.”

The Period of PURPLE Crying program approaches SBS/AHT prevention by educating parents about increased crying between 2 weeks of age and 4-5 months of age as part of their infant’s normal development and the dangers of shaking an infant when frustrated with crying. Parents receive the program materials (booklet and DVD or booklet and mobile app) in a maternity delivery setting, usually in hospitals, and take the materials home with them. The Period of PURPLE Crying is a program of the NCSBS headquartered in Farmington, Utah.

The study compared SBS/AHT hospitalization rates prior to the PURPLE program being implemented in British Columbia (BC), Canada to SBS/AHT hospitalization rates after the program was implemented in 2009. In the eight years following the program’s implementation and despite the great recession, which has been shown to be a contributor to increased SBS/AHT, the rate of SBS/AHT hospitalizations for children less than two years of age fell from 6.7 cases to 4.4 cases per 100,000, a 35 percent decrease. Similarly, SBS/AHT hospitalizations for children less than one year old fell from 10.6 cases to 7.1 cases per 100,000, a reduction of 33 percent.

“Our research found that the Period of PURPLE Crying is associated with a significant reduction in shaken baby syndrome cases in British Columbia,” said Dr. Ronald Barr, the study’s lead author. “Our next steps are to further evaluate the success of the program and continue to increase awareness of the risks of shaken baby syndrome in BC.”

The study also found that 27 percent of mothers reviewed the PURPLE program materials in the maternity hospital, and 71 percent of mothers reviewed the materials in the 2-4 months following the delivery. Fifty percent of fathers also reviewed the materials in the 2-4 months following delivery. This finding is particularly important in showing the PURPLE program’s use later when the infant’s normal increased crying and parents’ frustration with the crying likely transpired. The increase in viewing after delivery suggests that having the materials at home benefited parents when the increased crying occurred.

Previous research on the Period of PURPLE Crying program showed that the program increased parents’ understanding of normal infant crying and influenced positive behaviors related to crying such as taking a break when their infant’s crying becomes too frustrating and sharing information about crying with other caregivers.

“We have heard from countless parents and caregivers about how the information in the Period of PURPLE Crying has helped them understand their baby’s crying and feel less frustrated,” says Ryan Steinbeigle, NCSBS Executive Director. “This new study is further evidence that the program helps families and keeps babies safe.”

Read full article by clicking this button: Full Article

Published in Connect